:: Hypoparathyroidism UK ::

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Welcome to HPTH UK

Working to improve the lives of people with Hypoparathyroidism and related parathyroid conditions.

HPTH UK NEWS No 4 out now

PTH 1-84 clinical trial still recruiting in Liverpool only

Have you been bullied by a public authority because of your HPTH?

View more news here....and travel advice here

How can you help us?

We were very lucky to have two fundraising events taking place this summer thanks to the efforts our courageous members. It's not too late to support them - we rely on your donations to keep going. If you, or anyone you know, are taking part in an event this year and are looking for a charity to support, please get in touch.

View more ways to help here..

Ben Lomond Climb, Saturday 12th June

A massive thank you to Natalie Love who climbed Ben Lomond in three and a half hours and came down again in two! Newly married, Natalie was diagnosed with autoimmune polyglandular hypoparathyroidism when she was six. She was in hospital with high calcium the week before the climb but undeterred, she carried on with her plan to raise funds and awareness about HPTH. Please give her your support and donate on our Bmcharity page.

Wirral Coastal Walk, Sunday 23rd May

Huge thanks to Hannah Knott, 17, who finished the walk for us in 6 hours, despite a pulled muscle. She was spurred on by the thought of her friend, Hannah Mullen (on left) who has Hypoparathyroidism and is in hospital unable to take part. Get well soon, Hannah M! Our Bmcharity page is still open for donations.

How can we help you?

Are you or your family affected by HPTH? Are you a doctor, scientist or student? Whatever your interest in Hypoparathyroidism, we will do our best to help. We work hard to improve the quality of life for all those living with HPTH by putting people in contact, providing information and resources, raising awareness about HPTH and campaigning for better treatment.

Please look around this site, which is being added to all the time. If you are a patient with questions, come to the forum and share your experiences with others. If you can't find what you need or if you have any other questions about Hypoparathyroidism or HPTH UK , or any suggestions or comments about the site please email us, write or call the helpline. We are always keen to improve this service and to listen and help where we can.

HPTH UK is a charitable organisation recognised by the Society for Endocrinology and the British Thyroid Association and is a member of the Rare Disease UK Alliance and the Genetic Interest Group.

Members Forum

Download the first Patient Information Leaflet on HPTH

What is Hypoparathyroidism?

Hypoparathyroidism (HPTH) is a rare endocrine disorder which can affect all ages. There are several forms - people may be born with it or inherit it but, most commonly, it is caused by surgery to the neck.

Insufficent levels of parathyroid hormone lead to low calcium levels in the blood. Unlike diabetics, and despite very similar difficulties, HPTH patients have neither replacement hormone therapy nor home testers available to help them manage their levels.

However, thanks to contributions from people like you, our understanding of HPTH is improving steadily and the new parathyroid hormone trial offers real hope for the future. More info

Art work by
Sophie Burrows
and
William de Wilde

Photos from