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News


2010

August

BBC Newsnight report highlights concerns about GP commissiong and rare diseases

BMJ:'Calcium supplements lead to increased risk of heart disease.'


June

Diabetes self testing 'improves glycaemic control'. When will HPTH patients  be allowed to self test?

Scottish member Natalie Love climbs Ben Lomond for HPTH UK.

April

First Hypoparathyroidism and Thyroid Awareness and Information meeting,Nottingham. 

'Rare Is Common' - recommendations for rare diseases in Chief Medical Officer's Annual report 2009 ( pages 39-45)

HPTH UK recieve a grant from the Society for Endocrinology towards the printing and distribution costs of the Patient Information Leaflet.

March

HPTH UK attends their first BES conference in Manchester and launches Leaflet

First International Thyroid cancer audit takes place

First Patient Information Leaflet on Hypoparathyroidism by HPTH UK and it's Clinical Advisory Team is produced in conjunction with Society for Endocrinology.

February

Rare Disease Day report - Scotland

Rare Disease Day
28th Feb 2010 - see UK events


2009




July


February               
Rare Disease Day

2008 

March                 
Orphanews Europe

February             
A Rare Day for Rare Disease

 

2007


2006


2005

July
Launching HPTH UK


 


   
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