:: Hypoparathyroidism UK ::

Useful Links

Please scroll down to see links to Patient Organisations, Professional Associations, Hospitals & Doctors, Journals and Databases.

Patient Organisations

Addison's Disease Self Help Group
The ADSHG is the UK support group for men, women and children diagnosed with Addison's Disease (or adrenal insufficiency).

AMEND
AMEND, the Association for Multiple Endocrine Neoplasia Disorders, is a UK registered charity supporting patients with Multiple Endocrine Neoplasia and associated growths, their families and friends.

British Thyroid Foundation
A patient led association for those with thyroid disorders.

But You Don't Look Sick
Support for those with 'invisible illnesses.'

Butterfly Thyroid Cancer Trust
Butterfly Thyroid Cancer Trust is dedicated solely to the support of people affected by Thyroid Cancer in the UK.

CancerHelp UK
The patient information website of Cancer Research UK.

CLIMB - Children Living With Metabolic Diseases
UK umbrella group providing information and support for parents, carers, professionals and patient support groups.

Contact A Family
Contact a Family is the only UK-wide charity providing advice, information and support to the parents of all disabled children - no matter what their disability or health condition. Freephone Helpline on 0808 808 3555

DiGeorges syndrome, 22q11 - Yahoo group
22q11 and You

European Thyroid Association
Aims to promote and improve knowledge of the thyroid field.

Eurordis

European Organisation for Rare Diseases

Managing Long Term Conditions
A forum for all those involved with people livig with long term conditions

Max Appeal - for children with DiGeorge syndrome,VCFS and 22q11.2 deletion
Charity website run by parents for parents

NORD - National Organisation for Rare Diseases USA

The Genetic Interest Group (GIG)
A national alliance of patient organisations with a membership of over 130 charities which support children, families and individuals affected by genetic disorders. HPTH UK is a member of GIG.

The National Osteoporosis Society
The National Osteoporosis Society is the only national charity dedicated to improving the prevention, diagnosis, and treatment of this fragile bone disease for women and men.

Patient UK
A directory of UK health, disease, illness and related medical websites that provide patient information. HPTH UK have co - authored the pages on Hypoprathyroidism and Hyperparathyroidism.

The Patient's Association
A national charity providing patients with an opportunity to raise concerns,get advice and share experiences of healthcare. Helpline 0845 6084455 or 0208 423 8999

Rare Disease UK
The national alliance for people with rare disease and all who support them.

Rarer Cancers Forum
Information website and forum for those with rare and less common cancers

Thyroid Cancer Support UK
Our sister group - an online yahoo forum for all those affected by thyroid cancer

UK Self Help Group Directory

Professional Associations

Society for Endocrinology
The major British endocrine society for scientists, clinicians and nurses who work with hormones.

British Association of Endocrine and Thyroid Surgeons
Professional Association, gives guidelines for surgeons

British Society for Paediatric Endocrinolgy and Diabetes

An association for patients and professionals to support children with endocrine disorders and diabetes.

British Association for Counselling and Psychotherapy (BACP)

Find a recognised therapist in your area.

National Parathyroid Education Foundation
The Foundation provides educational services to doctors and patients via publications in medical journals, lay media, websites, blogs, and video while providing social networking tools which allow patients to connect and self-educate for a healthier life.

Hospitals and Doctors

SpecialistInfo.com
Database of over 34, 000 consultants and over 37,000 UK GP's.

The Endocrine Surgery Centre
This surgery centre is based at the Cromwell Hospital, a private hospital in London. Useful website

Mr John Lynn - London endocrine surgeon
Information on all aspects of endocrine surgery for patients, medical students and qualified practitioners by London Surgeon John Lynn

Norman Parathyroid Centre

Mr Andrew McLaren - NHS endocrine surgeon

The Royal Marsden Hospital, London
UK's leading cancer centre

Institute of Cancer Research
USA leading cancer centre

Hospital for Sick Children ( SickKids)
and Calcium Clinic, Toronto,Canada

Journals

BMJ

Bone
Journal of the International Bone and Mineral Society

BoneKey
Free, open access online knowledge environment of the International Bone and Mineral Society

Cambridge Journals

JECM
Journal of Clinical Endocrinology and Metabolism

NEJM
The New England Journal of Medecine

Databases

The Diseases Database

The Yellow Card Scheme
PLease report any side effects from medicines here to the MHRA

Helplines

The Benefits Enquiry Line Tel 0800 882200